I will first tell you that I honestly do not know. I have something that happens and through research, it could be this. Definition: Esophageal spasms are painful contractions within the muscular tube connecting your mouth and stomach (esophagus). Esophageal spasms can feel like sudden, severe chest pain that lasts from a few minutes to … Continue reading An Esophageal Spasm…Maybe?
Category: My CDH1 Journey w/out a Stomach
This post is to all of those of us that have had to have a Total Gastrectomy or TG as we call it in our world. I do not know everything and I have had a lot of bumps (mountains) along the way. However, I am five years past having my stomach removed and I … Continue reading The BIG Turn
I did a little searching and I learned that the "traditional" gift of five years is wood. To celebrate 5 years of not being able to get stomach cancer I have drawn a picture of wood in a coffee cup. If you knew me at work, you would understand why coffee is so very important … Continue reading A lustrum: aka – 5 years
Over the last months, everything that I do is about my mom. I am constantly trying to understand what I need to know to do right by her. I am her POA and her health care agent. It means that I make the decisions now that she cannot. It is not a place that I … Continue reading An update about me…not mom
A milestone is defined as; 1- A stone set up beside a road to mark the distance in miles to a particular place. 2- An action or event marking a significant change or stage in development. When I think about this definition I feel that both fit for me. I think about all of the … Continue reading When to celebrate?
I haven't written for awhile and I can tell you that it gets to be a deep itch to get in front of the computer and be me. I apologize up front for the fact that this may be a little odd and very off-course. It's been a long summer and my brain needs to … Continue reading Stages in the gutless “King”dom
As I have gone through the changes in my life, I have spent a significant amount of time thinking about how I live life "after". After cancer, after surgery, after a death or after a major change. Sometimes, I was so focused on how I was going to live "after" that I forgot to live. … Continue reading Living Life @ 5,000 Feet
OK, I may not be a scary ghostlike poltergeist however I can tell you that the "somewhat normal Mel" is BACK! I couldn't be happier! If you haven't had a chance to read my last few posts, I have been dealing with a very significant amount of fatigue. It has been a long last few … Continue reading I’m Baaaaaack…
Hello I hope you are all doing well. I thought I would give an update as there have been many doctor appointments and we are (finally) trying something. My last update talked about being tired. The best way that I have been able to explain it, is that I am in that "afternoon - hit … Continue reading Looking for the needle…
Hello my dear friends! I am sure you are thinking "what the heck is this girl talking about!". Well, for a mere $20, I have a stomach!! No, really, I do! I know it is stuffed with fluff (like pooh bear) but it makes me smile. I could have purchased a uterus or even an … Continue reading I bought myself a Stomach!